Author: Deanna Cotten
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The Wheelchair I Didn’t Want That Changed My Life
Life in a wheelchair was never on my Bingo card. I used to run 5Ks on purpose… Hold that image for a moment because everything that follows makes more sense when you know who I was before all of this started. The Trip That Opened My Eyes Three months before my terminal ALS diagnosis I…
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The Hard Decisions to Make With ALS
Some of the hardest decisions you’ll ever make with ALS have nothing to do with bucket lists or goodbyes. They’re the quiet, deeply personal decisions about breathing support, nutrition, hospice and palliative care. And for those living in states or countries where Medical Aid in Dying is legal, that adds another layer of complexity to…
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5 Practical Ways to Help Your Loved One Newly Diagnosed With ALS
When someone you love is diagnosed with ALS… everything changes. Not just for the person diagnosed. But for you too. This diagnosis lands hard on everyone involved. There’s a moment where life splits into two parts: before the diagnosis… and everything after. And if you’re on the outside looking in, you’re probably asking yourself what…
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Don’t Wait to Do These 5 Things After Your ALS Diagnosis
It never gets easier hearing that someone else has joined this club that nobody wants to be a part of. Not only is this ALS diagosis the worst news you have ever received, but from this moment forward you’ll be making life or death decisions for the rest of your life. There was so much…
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What Is ALS? What I Wish I Knew About My Diagnosis
When I received my ALS diagnosis in January 2024, I had no idea what it was. Up to that point, I believed everything was figureoutable. Looking back, I’m actually grateful for that. I walked into that doctor’s office without a Google-fueled panic spiral. I hadn’t spent months or years believing I was dying but nobody…

