Tag: respiratory onset ALS

  • The Long Road to an ALS Diagnosis

    The Long Road to an ALS Diagnosis

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    by

    Deanna Cotten
    in

    ALS has one of the most complicated diagnostic processes leading to a long, traumatic road to diagnosis. The diagnostic process is almost more traumatizing than the diagnosis itself. If you’re scrolling Tik Tok’s or sitting in a Facebook group right now wondering if anyone else has experienced what you’re experiencing, this post is for you.…

  • ALS Is Not a One Size Fits All Disease

    ALS Is Not a One Size Fits All Disease

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    by

    Deanna Cotten
    in

    When I was diagnosed, I had no idea ALS was. More importantly, I didn’t realize this wasn’t a one-size-fits-all diagnosis that came with textbook treatments and understanding across the scope of healthcare. I’d heard of it once before when a friend’s husband was diagnosed but even then I didn’t understand the full weight of what…