Tag: ALS quality of life

  • The Wheelchair I Didn’t Want That Changed My Life

    The Wheelchair I Didn’t Want That Changed My Life

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    by

    Deanna Cotten
    in

    Life in a wheelchair was never on my Bingo card. I used to run 5Ks on purpose… Hold that image for a moment because everything that follows makes more sense when you know who I was before all of this started. The Trip That Opened My Eyes Three months before my terminal ALS diagnosis I…

  • The Hard Decisions to Make With ALS

    The Hard Decisions to Make With ALS

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    by

    Deanna Cotten
    in

    Some of the hardest decisions you’ll ever make with ALS have nothing to do with bucket lists or goodbyes. They’re the quiet, deeply personal decisions about breathing support, nutrition, hospice and palliative care. And for those living in states or countries where Medical Aid in Dying is legal, that adds another layer of complexity to…